'Bounce4Batten' was launched in 2014 by the family and friends of Mia, a 6-year-old girl suffering from Batten Disease. The inspiration was for friends and family to promote awareness by bouncing and posting photos on social media. The joyfulness of bouncing delivered a message of awareness resonated. The reaction was fantastic, friends and friends of friends from around Australia and as far afield as New York, Singapore, and Paris bounced and posted.
In 2016, we hope to spread the joy even further and create awareness for all Batten children and their families. One day soon we hope to play a part in finding a cure through supporting research.