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I’m not going anywhere

11/6/2018

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“I’m not going anywhere,” her small voice resounded. A defiant nod to her power and feisty nature despite her petite size.

“I’ll assault you when you least expect it, I’ll come and say hello when ever I need to and sometimes I don’t even say a word, but I’ll always be with you.
You can try and ignore me, try and figure me out. What ever you do, I’ll always be one step ahead of you, ready to surprise you and bring you to your knees.

I’m not malicious or cruel. I’m small and I’m right here. I’m love turned inside out and upside down. Don’t you hear me reflected in your world? In everything you smell and see and hear?
Why aren’t you listening to me?
I’m not ever going away.
I’m in your heart and in your head and etched deep within your soul. Please don’t complicate me. I’m the innocence of a child and the wisdom of one thousand women. You can never break me or navigate your way around me.
I am a solid wall, transparent and fluid like the ocean too.

Don’t worry. I’ll always be with you.”

My grief.

Peta Murchison
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    Author 

    Stories of our love, heartache and friendship. Written by a mother.

    ​Our family is dedicated to raising awareness for Batten Disease. Batten Disease is a rare degenerative genetic disease that affects otherwise healthy children who can sing, dance and bounce. From a young age affected kids start to lose their ability to walk, talk, see and smile. There is no cure for children affected and it will eventually take their lives. Awareness and research into this rare disease is imperative to find a cure.

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