Bounce4Batten
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The Grace Tales

1/4/2015

 
We had a very special afternoon with talented photographer Julie Adams, gorgeous Georgie Abay founder of The GraceTales and Sarina Zoe who made me fabulous for the photos with flowing hair and make-up. Toby fell asleep on the couch shortly after the team arrived and wasn't too keen to smile for the camera when he arose but Julie worked her magic and the girls were so relaxed and gorgeous that he came around ... eventually. Mia lit up with her smiles and giggles and made some new friends of course. Thank you for the opportunity to share our story it was very cathartic to write it down and we are grateful for the opportunity to let more people know about 'Bounce4Batten'. To read our interview please visit The Grace Tales.

http://thegracetales.com/the-tale-of-peta-mia-toby-murchison/


Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams
Photo: Julie Adams

    Author 

    Stories of our love, heartache and friendship. Written by a mother.

    ​Our family is dedicated to raising awareness for Batten Disease. Batten Disease is a rare degenerative genetic disease that affects otherwise healthy children who can sing, dance and bounce. From a young age affected kids start to lose their ability to walk, talk, see and smile. There is no cure for children affected and it will eventually take their lives. Awareness and research into this rare disease is imperative to find a cure.

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