Let's all Bounce4Batten and help set a Guinness World Record
Help us jump up and down to support National Batten Awareness Day this Friday March 31st
Batten Disease is a rare neurodegenerative genetic condition that is debilitating and sadly fatal that affects mostly children and there is still no known cure.
The progression of the disease is rapid and children lose the ability to walk, talk, see and eat.
To make a difference all you have to do is bounce a bit (or a lot because you probably won’t want to stop), and post a pic on social media. Not only does this get the message out and raise awareness for Batten Disease, it spreads joy…and smiles are the best. So get on the case, bounce ANY way that works for you - be creative, take a photo and jam news feeds with portraits of happiness let’s all #Bounce4Batten and help set a Guinness World Record for Mia.
The Guinness World Record we are attempting is: the largest online album of people jumping in the air. The record is measured by the number of individual photos in the online album. And we need over 50,000 entries – you can upload as many photos as you can!
How to get involved?
1. FOLLOW @Bounce4Batten and @OnlyAboutChildren and get bouncing
2. SNAP A BOUNCING PHOTO – with BOTH feet off the ground - yourself, the kids, a friend, anyone!
3. SHARE: at #Bounce4Batten #OnlyAboutChildren and encourage your friends, family and followers to do the same
4. HELP US SET A GUINNESS WORLD RECORD: submit your jumping pics at www.bounce4batten.com.au or in the world record attempt tab above and help us set the Guinness World Record for Mia
Any donations that flow on from this awareness are directed to the national registered charity Batten Disease Support and Research Association (BDSRA) to help support research for a cure.
Batten Disease is a rare neurodegenerative genetic condition that is debilitating and sadly fatal that affects mostly children and there is still no known cure.
The progression of the disease is rapid and children lose the ability to walk, talk, see and eat.
To make a difference all you have to do is bounce a bit (or a lot because you probably won’t want to stop), and post a pic on social media. Not only does this get the message out and raise awareness for Batten Disease, it spreads joy…and smiles are the best. So get on the case, bounce ANY way that works for you - be creative, take a photo and jam news feeds with portraits of happiness let’s all #Bounce4Batten and help set a Guinness World Record for Mia.
The Guinness World Record we are attempting is: the largest online album of people jumping in the air. The record is measured by the number of individual photos in the online album. And we need over 50,000 entries – you can upload as many photos as you can!
How to get involved?
1. FOLLOW @Bounce4Batten and @OnlyAboutChildren and get bouncing
2. SNAP A BOUNCING PHOTO – with BOTH feet off the ground - yourself, the kids, a friend, anyone!
3. SHARE: at #Bounce4Batten #OnlyAboutChildren and encourage your friends, family and followers to do the same
4. HELP US SET A GUINNESS WORLD RECORD: submit your jumping pics at www.bounce4batten.com.au or in the world record attempt tab above and help us set the Guinness World Record for Mia
Any donations that flow on from this awareness are directed to the national registered charity Batten Disease Support and Research Association (BDSRA) to help support research for a cure.
Proudly supported by Only About Children and Haus Of Comms
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Watch Bounce4Batten founder Peta speaking at The Sydney Opera House Tedx Event in 2016
